I also have Tonic-Clonic Seizure which are your stereotypical seizure - unconscious full-body convulsions.Often I will get a warning, called an aura, before a seizure which will give me time to get on the floor or somewhere else where I will be safe and comfortable. Other time, like yesterday morning I get little or no warning - yesterday I collapsed in the bathroom and have a nice bruise on my hip from it. Sometimes a seizure lasts a few minutes; other times they can go on for quite a while. Sometimes I go into what is called a 'Status Seizure' episode whereby I have repeated seizures and generally require a 999 call out and medication to bring me out of the seizure.
I also have Absence Seizures which just look like I'm day dreaming and only last a brief few seconds.
I have Absence and Myoclonic seizures on a daily basis. I've learnt to live with them though they can still be frustrating, like trying to make a cup of coffee and your arm jerks spilling coffee everywhere. I've learnt to adapt - I drink from lidded cups and have plastic crockery incase I drop it. I try to look at the humorous side of things but deep down it is exremely frustrating (just like I do with my subluxations and dislocated joints). And I have Tonic-Clonic seizures approximately every 3-5 days, though sometimes they can be a daily occurrence too if I'm having a bad week.
My seizures where put down as non-epileptic and part of a condition called Functional Neurological Disorder, but back in July when I met with a specialist neurologist he wasn't 100% convinced that my seizures where purely non-epileptic, so I'm waiting to have a Video Telemetry EEG test to rule out or rule in Epilepsy alongside the non-eplielptic seizures.
There are a few triggers for my seizures including: stress, tireless, pain and over sensory stimulation among other things including biological factors like low blood sugars, low blood pressure, having an infection etc.
The thinking behind non-epileptic seizures is that with FND the brain is unable to properly send and receive messages properly and when the brain gets overwhelmed, whether it be from pain, stress, tiredness or even low blood sugars the brain short-circuits and a seizure occurs.
- Thank you to my Dad, step-mum, carers and friends who care for me when I'm having my seizures
- Thankful to the paramedics who help me
- Thankful for the medication that helps manage my seizures on a daily basis and reduce medication like IV Diazepam
- Thankful to be under the care of a super specialist neurologist - Professor Mark Edwards
- Thankful for the NHS esp A&E (despite it's flaws)
- Thankful for my carers who help give me independence and confidence as much as possible