I thought it would be easy tube in pump on feeds go but it isn’t .
- I spent a lot of time at A&E because I wasn’t trained or allowed to insert my own tube at that point, so everytime it blocked, accidently pulled out or if I threw it up I had to go to A&E to get a new one.
- Wanting to throw the pump out the window for alarming for no real reason (normally in the middle of the night when you’ve just got to sleep)
- Leaks happen, loose connectors, not putting the syringe in right. You do get wet and sometimes the feeds or Meds does not wash out.
- Sometimes you just can’t reach your feed target and shouldn’t be afraid to talk things over with the dietician.
The online tubie community is lovely and supportive and friendly whether your a newbie tubie or not and have tips and tricks that even the nurses don’t know.
A real good awareness website is www.feedingtubeawareness.org/