Monday 25th FebruaryHad my carers 11-1pm. Got something to eat and then met my advocate at 2.30pm. We discussed meeting with the Practise Manager and I gave her an update on things and how i was feeling.
At 3pm I had a CPA/meds review with my MH care-co and Dr.
Went home via the pharmacy.
Rested for the rest of the day as I need as much energy for Thursday.
Tuesday 26th FebruaryGlad I went to the pharmacy yesterday and got them to deliver my meds today and woke up not feeling great and it just wouldn't have been possible to have gone in my ½ hr care call today. Instead my carer and I nipped to the post office (I would have left it to my carer but I need cash out) and then we sorted my meds out as my hands have been in too much spasm, also got something to eat and today's carer makes good coffee.
Not the best day seizure wise. Had one this morning and then another in the car with my carer.
Wednesday 27th FebruaryMy hairdresser came midday to trim my fringe and then my carer came. i was hoping to get my hair braided but instead my body opted to have a prolonged seizure and make acquaintance with a rapid response paramedic. Thankfully he listened to me and my care needs and wishes. Entonox helped calmed my spasms down and I was also pop my joints back in. The paramedic also gave me some of my own diazepam. I was still having bad myoclonic seizures but he didn't want to overload me with a top-up of IV diazepam. My carer stayed as log as she could and she was trying to arrange for another carer to come and take over when my friend Abi came to the door (in the chaos of everything I'd forgotten she was coming). Abi was happy to stay so my carer could leave. As there was very little A&E could/would actually do the paramedic and I decided home would be the best place for me and to call back if I start to get worse again.
Abi was great, she made me a sandwich and a coffee and she was patient with my speech difficulties and we chatted and it was a nice distraction.
In the evening I got my bag and packed lunch ready; put things on charge and downloaded some things to watch on my iPad and then had an early night.